You don’t look ‘disabled’

A common thread I see a lot, and I am not sure if it’s ‘Blue Car Syndrome’* or not, but there seems to be such a negative steer against those with disabilities. Particularly, those who are considered ‘ambulant’ disabled*. Since my diagnosis in 2019, I’ve had a lot of this negativity pointed directly at myself so I wanted to set the record straight on what it looks like to be disabled.

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Disability & Me

My partner and I were talking today about people’s opinions when it came to disability. Talk of how law should change to reflect and encompass what it means to be ‘differently abled’ and how that affects how you’re seen to others. Most importantly how you’re seen to those who aren’t walking a mile in your shoes.

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Let’s go on an adventure!

One of my closest friends from university introduced me to ‘adventures’ and since then I’ve been hooked. We may see an adventure as something momentous, to go out to the world and explore or do something you’ve always dreamed of doing. Yet it doesn’t have to be daring or risky, as long as you leave each one with a great memory. She taught me how to fall in love with exploring cities and doing things I’d usually put off. What she taught me was that an important part of an adventure is what you make of it.

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Creating a healthy routine

I’ve found that I’ve felt more happier and less stressful since I decided to ‘work’ on myself. I’m making progress on being more positive, healthier and learning to ask for help; and I find I’m not alone as much anymore. Another aspect that has helped me battle against stress and fatigue has been adding a bit of a structure and routine.

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Cultivating my ‘Safe Space’

I’ve always described myself as quite introverted. Always more comfortable in a library or with a book in my hand, headphones in my ears, and the world held at arms length. To friends and family, I’m loud, talkative and goofy. I’d probably be described as the ‘funny one’. Perhaps I’m more of an extroverted introvert? Once I’m more comfortable around you, I tend to be an open book and my volume increases; but every now and again, I find the need to recharge my batteries, so I hide away in my safe space.

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Learning to explore

Sometimes, it’s good to get outside for a bit and blow away the cobwebs. It gives me time to refocus and regroup so that I can better collect my thoughts so I can create pieces I’m more happy with. That said, with my condition, and being stuck in a bustling urban environment, it’s hard to seek out nature. Still there’s beauty to be found, if you know where to look.

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